Many good things have happened - although I still live in pain. I have been succe3ssfully working at a job for 6 months with 2 raises. Yesterday I worked for 7 hours and earned $43.00 which is a record for me in my transcription job.
We also moved to a house without stairs, in Smyrna. Life is easier when I need to nap. Wheelchair fits through bathroom doors.
Saw Dr. BQ all summer and she was very helpful about showing me that sometimes I should just grieve. No point in fake "its ok". That has done wonders. After a day or so of feeling bad I'm back to myself. I also learned some relaxation and yoga.
Got a diagnosis. Central Pain Syndrome. Its a diagnosis of exclusion. something in my brain is misinterpreting healthy signals as pain. No cure. But, Hospice is involved and I'm on Decagon - a steroid - and it seems to actually be helping a bit. At least, I've gone up from 2 mg to 8 mg with no negative side effects whatsoever. Trying not to get my hopes up too high.
Love our new house.
Tim is the best!!!
Traveled to FL twice this year. Monica's wedding and then in Aug to the Rempe reunion.
Stopped driving completely in mid-summer. Seemed to risky. Scares Tim & me.
Tim's folks visited. Hadn't seen them in 2 years. Good visit.
Don't see Dr. Q anymore but, we keep in touch.
Still struggle with feeling isolated sometimes but, the job is great for me and I really have pulled my family in around me as my close friends.
I am adapting and surviving. Still don't know how or why this happened to me, but if I have to live with this pain, I will try not to suffer from it.
Life is monumentally better than it was 10 months ago. I am happy. I am in almost constant pain but - I am happy.
Maybe I should write more often.
